Hear from Adrenoleukodystrophy (ALD) Families
Although everyone's experience with ALD is different, it can be helpful to hear from other families navigating diagnosis, symptoms, management and everyday life.
Hear from other families and their experience living with ALD.
Hear from other families and
their experience living with ALD.
Hear from other families and their experience living with ALD.
Hear from other families and
their experience living with ALD.
Something came back on his newborn screening for adrenoleukodystrophy. At the time of diagnosis, I didn't even hear what he said, I just heard a very long word. This is what we have, and this is what Dominic has.”
Marisa
ALD Caregiver