Resources and Support

ALD STORIES

Resources and Support

ALD STORIES

Hear from Adrenoleukodystrophy (ALD) Families

Although everyone's experience with ALD is different, it can be helpful to hear from other families navigating diagnosis, symptoms, management and everyday life.

Hear from other families and their experience living with ALD.

Hear from other families and
their experience living with ALD.

Hear from other families and their experience living with ALD.

Hear from other families and
their experience living with ALD.

I think the magic that Ruairi has is his tremendous desire to laugh, to have a good time...He takes every single opportunity to go out and have a good time, to be a young man, to enjoy himself.

Aaron

Something came back on his newborn screening for adrenoleukodystrophy. At the time of diagnosis, I didn't even hear what he said, I just heard a very long word. This is what we have, and this is what Dominic has.

Marisa

ALD Caregiver

Jack has taught us a lot about living at his speed. But if you slow down, you realize how much you’ve been missing. I know all parents feel like their kid is special, but there is something magical about him. Honestly, he’s amazing.

Jesse

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Sign up to get additional information, resources, and support
that can help you on your ALD journey.